We've just returned from Indianapolis. I'm too tired to give you all of the details, but suffice it to say that your beloved Spinster was a hot mess from the moment she woke up yesterday until the moment she collapsed in the Happy Chair moments ago.
We got lost, circled blocks over and over again, had mini meltdowns, got on the wrong elevators, walked about seven miles, and soaked through our clothes with stressy flop sweats and no matter how many paper towels we carried we were still dripping indelicately all over the damn place.
And by "we"...I mean "me".
Magoo stayed at the hotel while I went to my appointments, and it was a high high low low kind if day.
The high high was seeing my beloved Dr Goggins and him telling me if he had a kidney he'd stick one in me immediately. He was thrilled with my weight and compliance to everything he's asked me to do and I even got a few pats and a sideways hug because he and I are now family.
(He uses the f-word a lot, and when I giggled at him using the f-word so much, he said "I forget sometimes, but sorry...I treat my patients like family and my family knows I drop the f-bomb.")
I'm in love.
The bad bad is that the United Network for Organ Sharing has implemented a new allocation method for kidneys, effective March 15. Before this change, I was in a "service area" that pretty much comprised Indiana and small parts of Ohio and Illinois. That meant that the pool was small and being at the top of the list meant a very short wait.
Now, though, the pool size has changed to a 250mile radius around IU, which means my status at the top is less hopeful for a quick transplant.
The news is devastating, to be sure, but I just need to chill and do my thing....keep the bags packed, watch the weight, be as active as I can, and pray. It'll get here when it gets here.
So, Dearies...I am going to crawl in the big girl sleigh bed for a bit and decompress. Every muscle in my back, neck, and shoulders is screaming and in spasm, so methinks it's time to be still for a bit
So.
What's new with you?
I am so sorry about the UNOS news. It stinks.
ReplyDeleteWhat rotten news! I am so sorry! You are such a brave, talented person. I consider you such a hero. I have no sweet, syrupy advice to give you at this time because you just don't need to hear it from someone who isn't walking your path. My path is so very different. Almost everyone has a different path. And I don't think most of us would want anyone else's problems. Just know all your readers really care about your pain, both physical and mental. Donna
ReplyDeleteDear Spinster..I'm so sorry to hear this news. Fear not, I'm sure you'll get a kidney sooner rather than later. You're on a special prayer list at the hospital where I work... luv,
ReplyDeleteMaryO
Well that isn't the best news. Do you know how far up the list you are now? Your doctor sounds awesome! Nice to know he thinks of his patients like family. You are in good hands :)
ReplyDeleteI'm sorry to hear you got such bad news about the new procedures for allocating kidneys, and that it was such a stressful trip. It is great news, however, that you're in such great shape and ready to go. Your doctor sounds wonderful! I know this waiting must be agonizing; you're right that you need to chill and just keep taking care of yourself. It will happen. You continue to be in my prayers. Hope you can relax and recover from your trip soon.
ReplyDeleteMary
The good news is that now that you have experienced all the wrong ways to go, what elevators not to take, this was the perfect dry run! The next time you will know all of this so the unknown is now known!!! You will be far more relaxed because you will know where you are going! I think your boyfriend will be with you for that trip, so you will be in a better state of mind! Congrats! You did exactly what you were supposed to do on a dry run!!!!! Yeah!!!!
ReplyDeleteWhenever I don't see you posting I think oh oh oh! She's been called... forgetting that you were this time going to the big city and check it out and they you. Keep your nose down and your eyes on the goal! Soon it will just be a memory! Ruth in Oxnard Ca
ReplyDeleteYou are on the right track despite any setbacks... In the
ReplyDeletemeantime Dr. Wonderful is pleased with your progress and no doubt has you at the top of his list. Continued patience and
spunk and that dry run with corrections will become a reality
with JB at your side. Are we going to celebrate !!
All I can do is send you hugs and prayers ❤️ I’m proud of you, and good things will come, I know it.
ReplyDeleteConi, you got this girl! The trail run was for you to get your butterflies out ahead of time. Hoping you get you phone call soon. Xo
ReplyDeleteConi, you made the trip to IN and back again and that was an accomplishment. You also got positive news from your McDreamy doctor who thinks of you as family-how wonderful to have a physician who really is taking care of you! The other news you met with calm and patience and with your sense of humor. You're wonderful and your "fans" here think of you often and look for your updates. Hugs.XO. Ellen in FL
ReplyDeleteJust a little setback but fear not, you'll get that kidney. It may be later rather than sooner now but you'll get it. Have patience. It'll happen when God wants it to happen and not a moment sooner.
ReplyDeleteWhat a wonderful doctor you have!
ReplyDeleteDespite the negatives of the day, you still achieved so much - hang on in there, you're doing amazing :) xx
Bummer on the transplant allocation changes. IIRC, I heard there were plans and discussions at U of Iowa on the change, but I didn't know if they went through with it. The getting lost, circling blocks, wrong elevators, etc were not a fail, you found out what not to do. Above all, all your hard work has paid off with keeping on track for being a good candidate for a transplant.
ReplyDeleteWhat a lovely doctor. What a way to make you feel happy and relaxed. Shame about the new changes, but you will get there.
ReplyDeleteConi, I had been thinking about you and wondering how you were fairing. I am sorry about the changes with the transplant allocation area, but it will happen so keep the faith. Even with the bad, it sounded like the good was better so hang on, keep doing what you have been doing and you will get there.
ReplyDeleteConi, I'm sorry to hear about this setback, but your sticktoitiveness will pay off!
ReplyDeleteI don't even KNOW your doctor and I think I love him!!!! Sorry about the delay. I know it's tough to deal with. When COVID vaccines were first released, we were told that "people with secondary health issues would be vaccinated first". Well, once the vaccine hit Minnesota, our Gov. Walz made up his own rules and it turned into a 'LOTTERY FOR LIFE' system. If your name was drawn, you got a vaccine! This caused many people with lung issues (such as my husband) to just become part of the "luck of the draw". It was very discouraging because our drs. told us that if hubby got COVID it would likely be a "death sentence". In spite of being registered with our "state lottery," our local VA hospital, AND our regional healthcare service, we waited 3 MONTHS for our first vaccines. Low and behold, it came from our local WALMART!!!! Since they are a national company, they weren't ruled by the MN Lottery! Thanks to good, old fashioned CAPITALISM, we were finally able to receive our first and second vaccines and to actually SEE our kids and grandkids for the first time in 9 MONTHS!!! We continue to wear masks and do what we can to limit our exposure, but AFTER almost having a total meltdown trying to get hubby his vaccines, I finally gave up and gave it to God!!! Thanks to God and Walmart, we're good to go. :) - Marcia
ReplyDeleteKeeping you in prayer for that kidney to come through soon!
ReplyDelete